Tim riding in Jinglecross 2009

Lupus Foundation of America Needs Your Help -- Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act 

Go to http://capwiz.com/lfa/home/

Click on the link "Urge Your Senators to Cosponsor S. 1630, the Affordable Access to Prescription Medications Act," enter your zip code in the box called “Call Now” and click on the “go” button. You’ll then be presented with the contact information for your senators, as well as get talking points for what to say when you call.

Please ask your family, friends and coworkers to call on your behalf as well.

RAGBRAI 2009

Here is the link to our RAGBRAI pictures:  

RAGBRAI is a week long bike ride across Iowa.  Tim and I did the last three days of the ride.  I was very nervous about being able to complete the ride for several reasons:   the sun, the heat, the miles, the hills, and being a less experienced rider.   I am delighted to say that I finished the 3 days!  This was a fantastic experience!  The ride ended up being about 200 miles of riding with 7,374 feet of climbing!

 Tim took care of me every step of the way.  He was constantly looking out for me during the ride.  He would often get ahead of me because he was a stronger hill climber than me, but he would slow once he was on top of the hill and wait for me to catch up.  I was very lucky to have such a loving riding partner. 

 Here is an account of each day: 

Wednesday, July 22, 2009

 Tim and I drove to Burlington, Iowa where we met some of his fellow team BEAST members.  We left our car in Burlington and drove with them to Chariton, Iowa.  In Chariton we found our group, Bike Burlington, and set up our tent in their camp area.  Once our camp was set up we went into Chariton and walked around the town square.  The square was full of activity, music, food and people. The atmosphere was a lively one throughout the town.   I  had a foot long corndog and an ice cream at a local ice cream parlor.  Yumm

 After eating and a bit of sight seeing we headed back to our tent..  There were bands, music, and lots of excitementt in the area.  I was excited to crawl into bed and get a good nights sleep to prepare for the next days ride. 

 Thursday, July 23, 2009

 About 4 AM it started raining!  It rained lightly at first and then it rained hard for about an hour, hailing for a short time.  We had planned on getting up at 5:15 AM, in order to start by 6:00 AM, but it didn’t stop raining until about 6:15.  When it did stop raining, there was a flurry of activity with campers packing up their tents, pumping up tires, and heading out. 

 When we hit the road the streets were wet and crowded.  I was so filled with emotion, happiness, pride, fear, and disbelief.  I couldn’t believe that this day had finally arrived.  I was riding on RAGBRAI with Tim! 

 Our breakfast was a breakfast in a bowl complete with a little kitten to keep us company.  For lunch I had corn on the cob.  Before we entered Ottumwa we had Beekman’s homemade ice cream.   I had chocolate!

When we entered Ottumwa there were lots of spectators waving and welcoming us to town.  One of the funniest things some one said to us was, “ We are glad that you made it here.” to which I had to reply, “ Not half as happy we are.”  I was delighted that I had made it through the first day without getting hurt, wrecking my bike, or giving up. 

 In Ottumwa we set up our tent and hung out the items that had gotten wet from the morning rain, and then headed for the shower.  The showers cost $5 and they were a tractor trailer with 7 shower heads.  I was so thankful that the showers were hot, I didn’t mind the lack of  privacy.

 After we were cleaned up we walked to a local convenient store for a pop.  Once we quenched our thirst, we headed for the vendors.  We didn’t get in much shopping before it started raining again.  We took shelter in our tent and waited out the storm.  Fortunately it didn’t rain long and  then we were able to head into town. 

 For supper we had a spaghetti dinner at the catholic church.  After supper we went into town to check out the festivities.  We walked up and down the strip and sat and people watched for a while before heading back to camp. 

 Our total miles were 76.9 with 3,388 feet of climbing!  The cities that we went through were:  Chariton, Millerton, Bethlehem, Confidence, Iconium, Moravia, Unionville, Blackesburg, and Ottumwa. 

 Friday, July 24, 2009

 Friday was the most difficult day.  We woke up with our scheduled 5:15 alarm.  We had wet laundry and a wet tent to pack from the previous days rain.  We headed out bright and early as planned.  The day started out with large hills!  I love hills!

 We stopped in Pekin at the school for breakfast.  It was a nice stop with real restrooms, (no port o potties) shade, the school band, baked goods, and a bench inside to rest.  We had sausage egg muffins and baked goods for breakfast. 

We stopped in Brighton for lunch.  Brighton had a cute little town square.  It was quiet warm and sunny so we started off  with a smoothie and a cool seat in the shade.  After our smoothie we had a bbq chicken sandwich. 

 On the way to Brighton we saw numerous signs for Whoopie.  There were clever sayings like:  “Where else can you get a piece of whoopie for $1?”   “Have whoopie on the road.” “Have whoopie in Brighton.”  SO, before leaving Brighton we had to purchase a whoopie pie, which turned out to be similar to a Suzy-Q.  Tim and I had our picture taken in front of a giant whoopie pie.  While we were posing for our picture the RAGBRAI film crew taped us as first time whoopiers!  Woohoo!  ( This is was a church fund raiser and all done in good clean fun!) 

After lunch there were a few more hills and plenty of sun and warmth.  We stopped at Beekman’s for another afternoon ice cream treat.  Beekman’s is yummy ice cream!   The Beekman’s  really hit the spot and gave me the motivation to finish the day.

 There were some big hills at the end of the ride.  I  can remember looking at one and thinking, “ You have got to be kidding me.”  I put my bike in granny gear and peddled my heart away.  At times I was sure that this spinning feeling must be how a gerbil feels in a running wheel.   I refused to give up!  There were several people pushing their bikes up these big hills, but I REFUSED to give up.  I came to ride, and that was just what I was going to do. 

 Just before we arrived in Mt. Pleasant I saw what I would have to say was my favorite costumed riders.  It was a monkey chasing a banana.  I thought that was very clever!  A bit later we came upon the monkey standing on the side of the rode.  I asked him what happened to his banana.  He pointed to the cornfield.  Not only were their costumes cute, they were nice guys. 

 Cornfield stops were common along the route.  I wish I would have posed for a picture coming out of one. 

 We reached Mt. Pleasant a little later  than we had planned, but the heat and hills were wearing me down.  Our campsite in Mt. Pleasant was in the very back of the campground and we had to take a rough gravel and dirt road to get there.  This campsite was packed!   

 I should mention,the Bike Burlington camp directors had done an amazing job of securing our sites each day and making sure that our luggage was unloaded and that we had cool drinks waiting when we finished each day.

 We kept with our usual routine of setting up the wet tent and hanging our laundry.  We found showers in the basement of an old church.  The showers were cold but the cold water felt good on my aching muscles and warm skin.  I took an extra long shower because I didn’t feel the need to share the hot water.  Showers also served as a time to wash the stinky clothes from the days ride. 

 After cleaning up and setting up camp we took the trolley up to the bus stop and then the bus to a local church for a meatloaf dinner.  After we ate we went to the center of town check out the local venders.  We had heard much talk of severe weather to come, so we were mindful to watch the skies as the evening went on.  We headed back to our tents as soon as we thought the dark clouds were upon us. 

 The forecast was rain and wind,  possible from 6pm to 6 am with the possibility of some storms being severe.  To prepare for the storm, we checked the ties on the tent and pulled the poles as tight as possible.  Each night the tent had leaked just enough to get us and our bedding wet.  We were able to give the tent an extra spray of waterproofing the previous day, so I was hopeful that we would stay dry. 

 We sat around and visited with some fellow riders as the winds blew and lightning flashed.  As it started to rain we took shelter in our tent.  It was warm and we were unhappy about having to zip up our door and windows.  I was worried that our tent was going to blow away or fill up with water.  We had been in our tent for about 30 minutes when we heard an announcement.  I could tell that the announcement was coming from something moving.  I was unable to make out anything that was being said.  Tim and I peeked out of the tent windows to see if there was any movement.  I was afraid that the announcement was that they were evacuating the campground.  I thought that I heard our neighbors say that there was a meeting in the church that said that the weather forecast  had been revised to light rain with no winds.   This eased my worried mind and I was able to fall asleep.   I think it only rained about 15 minutes all night.  It wasn’t until the next day that someone told us that the announcement had actually said that the local hospital, police, and fire departments had been put on full alert and they would keep us posted as to weather alerts.  I am glad that I did not hear that, as I never would have been able to sleep. 

 Friday’s ride was 75.5 miles with 2,841  feet of climbing.  The towns that we rode through were:  Hendrick, Martinsburg, Pekin, packwood, Pleasant Plain, Brighton, Germanville, Lockridge, and Mt. Pleasant. 

 Saturday, July 25, 2009

 5:15 AM brought our RAGBRAI wake up alarm.  We folded up our wet tent and gear and headed out.  Just as we were heading out someone in the camp played  a  bugle to get everyone up and going for the final day of riding.  In this camp there were several rows of  US Air Force tents. 

 We had Chris Cakes for breakfast.  Chris Cakes is a pancake / breakfast catering franchise.  They use a batter dropping machine to make mass quantities of pancakes very quickly.  The cooks are known for flipping the pancakes to plates.  Tim caught his moring breakfast.  This was an all you can eat breakfast, and we took full advantage. 

 We made a few stops for water on the last day, but didn’t eat lunch until we were finished.  In Burlington they had a Snake Alley Challenge.  The challenge was optional, but I was feeling courageous  so I thought I would give it a try.  I made it to the last turn, and had to give in.  It wasn’t until I was down a block from the alley that I realized that I wasn’t in granny gear going up Snake Alley.  I can’t help but wonder if I had been in granny gear would I have made it?  I’ll have to rematch the snake some day. Look out Snake, we’ll meet again.  

 We arrived in Burlington and watched the riders dip their tires into the Mississippi.  We had lunch of pork tenderloins and pop.  We walked up and down the Port of Burlington for one last look before we mounted our bikes again and headed up to get our car and then to Bickels to get our gear. 

 Saturdays ride was 46.9 miles with 1,145 feet of climbing.  We rode through New London, Lowell, Geode State Park, and Burlington. 

 This has to be one of the best experiences of my life.  It would not  have been possible without Tim.  Thank you sweetie for encouraging me to continue an active lifestyle and watching over me every step of the way.  

Brian's 50 mile run on the Great Wall of China!

http://www.lupusrunner.org/

Brian Thomas is the founder of Lupus Runners, the group which Tim and I joined this year. The group raises money to be donated to the Lupus Foundation of America. 

Brian is planning on doing a 50 mile solo run on the Great Wall of China this weekend as part of his fundraising efforts. 

Please keep him in your thoughts and prayers for a safe and successful run. 

Thanks Brian for supporting those of us who live with lupus.

My New Bike!

I would like to introduce you to my new bike! She is very pretty and a lot of fun to ride!

I'll be doing my first duathlon next weekend. I am very nervous about this event. I can see myself getting lost on the bike course. Yes, I did do something like this once before. I missed a turn and went up the biggest hill that I have ever seen in my life, only to learn once I was at the TOP that I should have turned before the hill. (That just meant that I got in a little extra exercise and got to eat an extra bite of ice cream that evening.)

Earlier this year I applied to be one of the new Trek Women Who Ride. This is a group of 5 women who are given new bikes and gear, and then blog on Trek's site for two years about their biking adventures. They did not select me... maybe I'll try again in two years. Tim and I will have some great bike adventures this summer.

I really love to ride my bike. I find myself freeing my mind of worries and becoming very relaxed. Tim and I also have a tandem bike. I love riding with him! He doesn't know it, but I sit on the back with my legs sticking out and let him do all of the work.

I would like to see a lupus supported bike ride. Chris, this is right up your alley!

Boston Marathon 2009

Tim ran in the Boston Marathon last month. He wrote a blog about our Boston visit, and you can see his blog here: http://timcsmith.blogspot.com/

I have to mention some of the incredible athletes that I saw in this race. First, I should mention that not just anyone can run in the Boston Marathon. You have to complete another qualifying marathon with a qualifying time, in order to participate in the Boston Marathon. Tim runs at about double my pace, so I think he is fast! When we saw the elite men and women runners run past us, my mouth had to be hanging wide open! These men and women make running look so effortless. We saw them at mile 10 and they looked like they were out for a Sunday stroll. It was amazing! I got a good shot of Ryan Hall as he cruised past me. In my mind he stopped and asked to kiss my cheek, saying that the Wesley College girls couldn't hold a candle to me. Check out this really neat video of Ryan Hall http://www.flotrack.org/videos/speaker/78-ryan-hall/170314-ole-ryan-halls-2009-boston-marathon-workout In it he explains why he loves running. It explains why his running looks so effortless. In a way I share his feelings. Although I don't run like he does, just the fact that I am able to run is amazing to me.

If you were wondering, I really did have an athlete stop and kiss me!

Okay, now for the athletes that I stole my heart. These men are amazing! The first picture speaks for itself! What amazing human spirit! The picture on the right is the father and son team known as," The Hoyts." This was their 1,000th race. You should take a minute to read about them.

http://www.teamhoyt.com/

Competing in the Boston Marathon I saw: a double amputee, a single amputee, a blind man, Team Hoyt, numerous wheelchair participants, and a man pulling a cart with oxygen tanks attached! This is only what was visible. I am sure there were many other athletes who had triumphed and were fighting an endless list of physical challenges. Congratulations to every one of them! It brings tears to my eyes to think about how courageous they are.

I wrote in my last blog that I believe one of the gifts of my lupus is the ability to see kindness and strength in others. These athletes inspire me to keep moving. My mother told me to always be sure to make myself get out and do things when I thought that I could because there would likely be days that I just couldn't make myself get motivated to move. I wonder if my mother knew just how powerful her words were. I wonder if these athletes' mothers gave them the same advice?

And The Doctor Says....

Iliotibialband Syndrome.

Fun!

Dr Debbie's Plan:
I may be down, but I'm not out. I'm not going to let a little pain stop me. This is nothing compared to the years of pain I have already been through with my ole pal lupus.

I'm resting. Ice is my new best friend. I'm stretching and using the foam roller. I have three sessions left with my trainer, and she is focusing on recovery. The only anti inflammatory drug that I can take is prednisone. I really, really, really don't want to go there again.

I still plan on doing my first duathlon this month.

Disclaimer - Deb is not a doctor, she only thinks she is when she reads articles on the internet. She did actually consult a physician for a second opinion.